In this episode, Shaimond and Antoinette interview Lucia Ricardo, a program lead at the Canadian National Institute for the Blind (CNIB). They explore the condition's history, personal experiences, the importance of awareness among medical professionals, and the impact of peer support. Lucia shares insights into the CNIB's efforts in supporting individuals with CBS, including the creation of a support group called 'Seeing Things.' The episode also delves into the challenges caregivers face, coping mechanisms for those experiencing CBS, and the significance of spreading awareness through various platforms, including arts and academia.
Contact Lucia at Lucia.Ricardo@cnib.ca
For more information about the CNIB visit https://www.cnib.ca
For help with Charles Bonnet Syndrome call 1-704-389-0160
Contact me at info@cbsyndromepodcast.com
For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com
For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk.
For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com
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