In this episode, Debbie and Katy answer questions in their third monthly Q&A session. They start by discussing Katy’s recent 10K race experience, discussing the impact of overexertion and fatigue. They explore the difference between general tiredness and inflammatory arthritis (IA)-related exhaustion, as well as Debbie’s experience with new fibromyalgia painkillers causing drowsiness and vivid dreams.
The discussion moves to eye health and the importance of regular checkups for those on IA medications. They answer the first question on the proposed upcoming changes to the UK’s Personal Independence Payment (PIP) and how it might affect people with IA. They also highlight the significance of workplace support, early diagnosis, and improved rheumatology services.
They also explore foot health and rheumatoid arthritis assessment with expert insights from Professor Adam Croft. They discuss the limitations of the DAS 28 score, which doesn’t include foot involvement, and share personal experiences with tracking disease activity and accessing biologic treatment.
Parenting with IA is another key topic with two questions, with practical advice for parents of children with juvenile idiopathic arthritis (JIA), covering clinic visits, self-care, and preparing kids for independence.
The episode wraps up with a fun discussion on irrational phobias—ranging from bees to polystyrene—and a humorous anecdote about a painful bee sting.
Resources & Links:
• What is PIP Government Link
• Our response to proposed changes in PIP
• Learn more about inflammatory arthritis at inflammatoryarthritis.org
• Foot Health and IA
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Next Episode:
Next week, we’re back with a deep dive into parenting with inflammatory arthritis—how it affects our daily lives and our children’s experiences. Stay tuned!
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Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
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