Description

In this episode I speak with Jess Ronne, founder of The Lucas Project, a nonprofit organization dedicated to supporting special needs caregivers. Jess shares her personal journey of caregiving, the challenges faced, and the importance of respite for caregivers. The conversation highlights the role of the church in supporting families with special needs, the need for inclusive spaces, and practical steps for individuals and communities to support caregivers. Jess emphasizes the significance of viewing caregiving as holy work and encourages listeners to cultivate relationships with caregivers to provide meaningful support.

Takeaways

• Jess Ronne is the founder of The Lucas Project, which supports special needs caregivers.
• Caregiving has been a lifelong role for Jess, stemming from her experiences with her son Lucas and her late husband.
• The Lucas Project provides respite opportunities for caregivers, allowing them to take necessary breaks.
• Many caregivers struggle with accepting help due to the ‘martyr caregiver syndrome.’
• Churches can play a vital role in supporting families with special needs by creating inclusive spaces.
• Sensory rooms are essential for children with special needs to feel safe and valued during church services.
• Building relationships with caregivers is crucial before offering respite or support.
• Caregivers often feel isolated and need companionship and understanding from their communities.
• The importance of recognizing caregiving as holy work that reflects Christ’s service to others.
• Practical steps for supporting caregivers include providing meals, gift cards, and offering to help with household tasks.

Chapters

00:00Introduction to Caregiving and The Lucas Project

03:12The Journey of Caregiving: Personal Experiences

06:02The Birth of The Lucas Project

09:01The Importance of Respite for Caregivers

12:06Understanding Different Caregiving Scenarios

15:09The Role of the Church in Supporting Families

18:02Creating Inclusive Spaces for Special Needs Families

21:03Practical Steps for Supporting Caregivers

24:13Final Thoughts and Encouragement for Caregiver