In this episode, I interview Jemma, who is a fighter of Hyperacusis. Jemma is 17. She has lived with hyperacusis since she was six years old. Jemma also has several other medical conditions, including being legally blind. Growing up, Jemma’s childhood has been very different from most kids. She has been unable to attend social events, go to the store or most public places, listen to music, wash dishes, go on vacation, or even take showers because the noise causes her extreme physical pain and lingering migraines. Her goal is to help raise awareness about my rare condition, hyperacusis and other rare disorders/chronic pain conditions, put in place laws to accommodate those with hyperacusis, and push for more research to be done on hyperacusis. She has started her own organization to bring awareness to Hyperacusis. In addition to advocacy work, she enjoys writing and plans to become a full-time writer/author as a career.
Keep up with her advocacy journey!
Blog: https://hyperacusisawareness.wordpress.com/
Linktree: https://linktr.ee/Jemma_Rosewater
Instagram: https://www.instagram.com/hyperacusis_awareness/
