This week’s interview is with an amazing woman named Emily Hall, who has hEDS (hypermobile Ehlers-Danlos Syndrome) and Lyme disease. She also struggles with diagnosed and undiagnosed conditions that affect her husband and her daughter. She helped create the Our Odyssey website as you see it today. She also works on the Center for Lyme Action Committee and is pushing for the passing of the Lymphedema Treatment Act. Emily and I discuss ableism, the double standards of having a personal assistant, what advocating a young age looked like for her, and much more!
Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, or wherever you get your podcasts! REMINDER: New episodes will be coming out on THURSDAYS from here on out!
Follow me on Instagram - @risforrarepodcast
Follow Emily Hall on Instagram - @emilyandthezebracrew
Fulgent E-commerce Solutions - https://www.fulgentecom.com
Our Odyssey - https://ourodyssey.org
Center for Lyme Action - https://centerforlymeaction.org
Lymphedema Treatment Act - https://lymphedematreatmentact.org
