Listen

Description

This week's interview is with Megan Freeman, a greeting card creator and rare disease advocate! She has a very rare chromosomal disorder called 2q37 Deletion Syndrome, which causes delays in growth and development. For Megan, she didn't experience puberty until her late teens; she is also 1 of around 150 people with this disease.
Megan and I discuss mental health as a rare disease patient, dating with a rare disease, all things advocacy, and much more!

Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, Overcast, or wherever you get your podcasts! And follow me on Instagram @risforrarepodcast for more rare disease and disability content!

Follow Megan Freeman on Instagram - @cardc.urator