In today's episode of R is for Rare, I'm interviewing my good friend Grant Bonebrake, who has a rare genetic kidney disease called Alport Syndrome. We talk about what his life has been like leading up to and since his diagnosis, why he loves to advocate, how great the rare disease community is, and much more!
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Find Grant Bonebrake on Instagram — @grant_bonebrake
Support the Alport Syndrome Foundation — https://www.alportsyndrome.org
YARR — https://everylifefoundation.org/young-adult-representatives/yarr-leadership-academy/#toggle-id-4
National Kidney Foundation — https://www.kidney.org
Living Donor Protection Act — https://www.congress.gov/bill/116th-congress/house-bill/1224?s=1&r=1
