In today's episode, I'll be talking about what Alagille Syndrome (or ALGS) is AND talking with an ALGS patient, Anna Laurent! Anna is a young adult who lives for rare disease advocacy. She is the Head of Programs and Initiatives at Our Odyssey, a non-profit organization created to provide the community needed for young adults affected by rare diseases. We talk about her story with ALGS, the awkwardness of middle school with a rare disease, and much more!
Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, or wherever you get your podcasts!
Check out Our Odyssey: https://ourodyssey.org/
Sign Up for virtual meet-ups through Our Odyssey: https://ourodyssey.org/virtual-meet-ups
Follow Anna Laurent on social media: @lilannalaurent
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Email me - risforrarepodcast@gmail.com
