This week's interview is with Allison Bartlett, who works as the manager of disability programs at Huntington's Disease Society of America (or HDSA) and is a disability attorney. She goes through the same step-by-step process of applying for Social Security disability that she goes through with her clients, as well as elaborating on the legal challenges that loved ones face with HD. We also discuss the importance of advocacy, both for yourself and in regards to pushing for legislatures!
Huntington's Disease Society of America — hdsa.org
Huntington's Disease Parity Act — hdsa.org/takeaction
Genetic Information Nondiscrimination Act of 2008 (GINA) — https://www.congress.gov/bill/110th-congress/house-bill/493
Difference between Medicare and Medicaid — https://www.hhs.gov/answers/medicare-and-medicaid/what-is-the-difference-between-medicare-medicaid/index.html
Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, Overcast, or wherever you get your podcasts! Leave a review to let me know what you think of the podcast!
Follow me on Instagram - @risforrarepodcast
Questions? Want to be on the podcast? Email me - risforrarepodcast@gmail.com
