Today's bonus episode is all about Rare Disease Day, which is celebrated on the last day of February each year! So, Happy Rare Disease Day! I go through the history of this special day, what some organizations are doing to celebrate, and how you can participate in this amazing day!
Share your story on social media with #RareDiseaseDay and #WearYourStripes!
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Anything mentioned in the episode / Resources used in the research for this episode:
National Organization for Rare Disorders (NORD) - https://rarediseases.org
NORD's Rare Disease Database - https://rarediseases.org/for-patients-and-families/information-resources/rare-disease-information/
EURORDIS (the NORD's sister organization based in Europe) - https://www.eurordis.org
Rare Disease Day website - https://www.rarediseaseday.org
Rare Disease Day at the National Institute of Health (NIH) - https://ncats.nih.gov/news/events/rdd
Narcolepsy Network - https://narcolepsynetwork.org
Our Odyssey - https://ourodyssey.org
Global Genes - https://globalgenes.org
EveryLife Foundation - https://everylifefoundation.org
Huntington's Disease Society of America - https://hdsa.org
AllStripes - https://www.allstripes.com
The Boomer Esiason Foundation - https://www.esiason.org
The Ehlers-Danlos Society - https://www.ehlers-danlos.com
Individuals with Disabilities Education Act (IDEA) - https://sites.ed.gov/idea/
Americans with Disabilities Act (ADA) - https://www.dol.gov/general/topic/disability/ada
Orphan Drug Act - https://www.fda.gov/industry/designating-orphan-product-drugs-and-biological-products/orphan-drug-act-relevant-excerpts
