In this episode of the imPACt, members of the PAC (patient advisory council) and parent working group (PWG) talk about patient-parent relationships in the context of IBD care and how these relationships evolve. Parents and/or guardians play a huge role in helping pediatric patients with IBD navigate and manage their IBD care. However, as patients grow older and gain independence, they may want to take more of a lead in their own care. This transition often shifts the roles of the parent and the patient in the IBD care team. Lisa and John, parents of a son with Crohn's disease share their perspective as parents and PAC members Shira and Fionna share the patient perspective. We share our own experiences as we become more independent, while at the same time still relying on our parents for certain types of support in our IBD care. We share example of what kinds of parental support have been vital to our physical and mental well-being.
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Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
