Welcome to Episode 012 of the Beyond the Diagnosis Podcast. In this episode Kathy talks with Debbie Drell, the Director of Membership for the National Office for Rare Disorders or NORD. Learn about Rare Disease Day 2022, how its impacted the rare disease world over the years and how you can get involved in Rare Disease Day this year.
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Resources mentioned in the podcast:
HA Rare Disease Day Info: https://histio.org/get-involved/raise-awareness/
NORD Virtual Event: https://rarediseases.org/rare-disease-day/rare-disease-day-register/
Share Your Story: https://rarediseases.org/rare-disease-day/rare-disease-day-share-your-story/
Light Up for Rare: https://rarediseases.org/how-to-light-up-for-rare-rare-disease-day-2022/
General Resources: https://rarediseases.org/rare-disease-day/resources/
EURORDIS: https://www.eurordis.org/
Music: “Heroes” by Noah Smith
