SOFT UK is proud and excited to announce a collaborative project with the NHS. We are working with Public Health England, NHS Digital and the Down’s Syndrome Association to create 2 films that will help families affected by Trisomy. These films will be widely distributed by the NHS and SOFT UK so are hugely important and will help so many families in their time of greatest need and uncertainty.
These films will be shaped by families with recent, lived-experience of Trisomy. We are looking for a variety of experiences, ranging from pre-natal diagnosis, ending the pregnancy, to living with the condition.
Everyone’s experience could truly help to make a difference and support families during their early stages of learning about the condition, the support available, and options open to them.
The one thing we hear time and time again, is that families wish they had known more at the start of their journey. Both SOFT UK and the NHS are determined to offer that to families in the future, so by sharing your experience, you will be helping us to shape this vision.
If you would be interested in helping, please complete this short surveyor email us.
Email: contact@soft.org.uk
Survey link: https://forms.gle/oWyzbWDmLxzeaN1Y7
