After being diagnosed with ALS, Tony Hart, determined to make the most of his remaining time, embarks on a journey to ensure his family's happiness and help advance ALS research, in spite of the overwhelming odds.
"You got to live in the moment, though. You got to relish every little moment. And even the easier stuff has to become fun. It just does."
Blair Hart is a lifelong resident of Indiana who was married to her husband Tony for 34 years until he was diagnosed with ALS in 2012. They had three grown sons together and ran their own business prior to the diagnosis.
Blair Hart and her husband Tony had been married for thirty-four years when Tony was diagnosed with ALS. After visits to various doctors and trips to the Multidisciplinary Clinic in Indianapolis, Tony was diagnosed with the life-ending disease. Tony and Blair decided to make the most of their time together, going on a month-long vacation and taking one last family vacation. After Tony's death, Blair found solace in staying up to date with the research around ALS and donating to the ALS Association. She found strength in her close family, who were able to make the best of a difficult situation and cherish the last moments they had with Tony.
In this episode, you will learn the following:
1. How did Blair Hart's family cope with her husband's diagnosis of ALS?
2. What strategies did Blair Hart employ to make her husband's last months the best they could be?
3. How is the ALS Association working to help those affected by the disease?
Resources:
Blair Hart discusses with us what it's like living with a loved one who was diagnosed with ALS. http://www.hbeindiana.com/ and you can donate to the https://www.als.org/.
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