Lisa Loughran, whose son Roger was born with the rare joint-and-muscle disease AMC (arthrogryposis multiplex congenita), visits RadioRotary to tell about the annual event for raising awareness and funds, Roger’s Run. When Roger was born in 2010, he displayed the form of AMC in which the joints are “frozen” in a way that all the limbs are completely extended. The condition, which also causes muscles to atrophy, was diagnosed before birth, leading Mrs. Loughran to seek out the AMC Support Group, which has helped immensely. Local doctors learned more about the disease and have gone beyond ordinary duties as Roger has gone through numerous surgeries. Despite the problems. Roger is active in Red Hook school and sports, inspiring the Red Hook Community. Roger’s Run includes several levels of both virtual and physical runs or just an opportunity to donate to an excellent cause.
Learn more:
Roger’s Run: https://www.rogersrun4amc.com/
Arthrogryposis multiplex congenita Support Group, Inc.: https://www.amcsupport.org/
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Arthrogryposis multiplex congenita. AMC, rare diseases