Paige sits down with Kacey Poynter for the first episode of season 5! Kacey shares her experiences as a parent of a child with several medical conditions. Kacey is Mom to Sonny, who has Dandy Walker Syndrome and is impacted by blindness/low vision. Sonny also has a tracheostomy and other medical needs. Kacey discusses her journey through diagnosis, treatment, and therapy for Sonny, highlighting both the challenges and triumphs she has faced along the way. She emphasizes the importance of parental advocacy, support systems, and listening to one's intuition when navigating medical and educational challenges for children with special needs.
Cathy, Jenny, and Paige reflect on the power of Kacey’s words.
Sonny's hashtag: #SonnyStrong
Kacey’s Blog Post:
https://adayinthelifeofkacey.wordpress.com/2022/09/13/the-incredible-story-of-sonny-jules/
Dandy Walker Alliance: https://dandy-walker.org/
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Children who are blind and low “Vision AND” have additional needs may receive early intervention services from multiple professionals. A list of those services can be found here. Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw
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