ALD Alliance founder, Elissa Seeger shares the story of her promise to her son Aidan who passed away from a rare genetic disease, Adrenoleukodystrophy.
She has been fighting and winning state by state, for the screening of all babies born in the United States for all 35 rare genetic diseases.
The testing doesn't require any extra testing for the child. In fact, blood is collected with a simple heal prick which most babies experience for all other testing. Hear how she's turned her promise into her life's purpose.
Warning: have your tissues ready!
