Dave Warnock was diagnosed with ALS on February 26, 2019, and was told that it was a terminal illness with no real treatment. Indu Navar lost her husband to ALS a few months later on August 13, 2019. During her husband's illness Indu struggled with the realization that although there were promising therapies for ALS in trials, treatments had little chance of being FDA approved without clinical biomarkers to show a treatment is working. Biomarkers are a standard measurement tool that amazingly this disease does not really have. Currently ALS progression is measured mostly subjectively through manual muscle tests and a pen and paper survey. Determined not to let her husband's death be in vain, Indu started an organization called Everything ALS which conducts their own research to identify biomarkers in ALS patients and makes this information available to pharmaceutical and bio-tech companies. Dave became an team member of EverythingALS in July 2021 as a patient liaison currently battling ALS. Tonight they discuss how Everything ALS intends to create a path to FDA approved ALS treatments - and possibly one day a cure. Dave and Indu also need your help, as a participant in their biomarker studies. They need both people with ALS and without as a control group. Please go to www.everythingals.org/reearch for more details on how you can help! An article about these biomarker studies: https://localnewsmatters.org/2021/11/16/bay-area-nonprofit-seeks-300-volunteers-to-participate-in-als-study/
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Hosted by: Dave Warnock
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Genevieve
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Guest: Indu Navar
www.everythingALS.org
Produced by: Ethan Micheal – Your Friendly Neighborhood Atheist
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