In this conversation, I speak to Pippa Stacey, a writer and communication consultant with a chronic illness called ME, who discusses her journey of living with a disabling chronic illness and the challenges she faces. She shares her experiences of growing up as a ballet dancer, the difficulties of getting a diagnosis, and the impact of ME on her daily life. Pippa also discusses the importance of managing energy levels, the challenges of balancing social life with chronic illness, and the impact of alcohol and sleep issues. She shares her views on hustle culture, the importance of breaks and consistency, and the challenges of being a writer. Finally, Pippa reflects on the intersection of capitalism and disability, and the pressure to become self-employed or entrepreneurial as a disabled person. In this part of the conversation, Pippa and Charlie discuss various themes related to work, success, identity, writing a book on chronic illness, blogging, speaking, and the challenges of influencer work. They explore the complex relationship between work and self-worth, the impact of disability on perceptions of success, and the role of internalized ableism. Pippa shares her experience of writing a book and the process of getting it published. They also discuss the power of online communities and the journey of creating and speaking. The conversation highlights the growth and evolution that comes with taking risks and embracing new opportunities. In this conversation, Pippa discusses the challenges of social content creation, the role of a communication consultant, and the evolving terminology and language of disability. They also explore the social and medical models of disability and the importance of inclusive language. Pippa shares insights on balancing multiple roles and stakeholders, creating safe spaces for conversations, and the impact of chronic illness on the social model. The conversation concludes with a lighthearted discussion on the snobbery of bookshelf organization.
Pippa’s LinkTree linktr.ee/lifeofpippa
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