As a NICU parent myself I remember all the worry going through my head in that journey with no story to hold on to. I remember once the Drs asking me to go to the parents room to make myself a cup of tea because the procedure they were going to do to my son may have been invasive for me to watch as his parent. I recall clearly why I broke down in the parents room alone. My husband couldn't be there that day, he had to stay with the other children at home and it hit me how not going through it alone meant you carried the load of worry with each other.
I craved to hear another parents story but there was none i could find. I yearned to read another parents story but I realised many of these stories are not shared to start with because unless you have walked in the same shoes, its not that simple to simply 'understand'
This is a poem for US. I hope I have managed to summarise those worries and thoughts within it. There is more coming x