Host Christina Brookman and cohost Dr Nate Straus interview disability advocate Jon Rodis, on connective tissue disorders Marfan Syndrome, Ehlers Danlos Syndrome, Loeys-Dietz Syndrome and his new organization, The Connective Tissue Coalition. More information and links can be found on our website wwws.speakinginspoons.com
#chronicillness
#disability
#ehlersdanlossyndrome
#marfansyndrome#connectivetissuedisorders#loeysdietzsyndrome#posturalorthostatictachycardiasyndrome
#chronicpain
#migraines
#rarediseases
#multipleschlerosis
