Pam Cusick of Rare Patient Voice joins host Trina Wilcox on The Run Radio Podcast to discuss the vital work being done to elevate patient voices in research and advocacy. With over 30 years of experience in health communications and patient engagement, Pam shares how Rare Patient Voice connects patients and caregivers with researchers to ensure real-world experiences shape medical innovation.
In this powerful conversation, Pam talks about:
How Rare Patient Voice is reshaping patient engagement
The importance of inclusion and representation in healthcare research
Her personal passion for amplifying voices in rare and chronic conditions
Whether you're a patient, advocate, or industry professional, this episode offers inspiring insight into how storytelling and lived experience can drive meaningful change in medicine and beyond.
