Listen to me gracefully ramble about my neurological struggles and what's to come. I'm hoping it will allow my audience to connect with me on a deeper level.
____________________________________________________
"Dystonia is a neurological hyperkinetic movement disorder in which sustained or repetitive muscle contractions result in twisting and repetitive movements or abnormal fixed postures. The movements may resemble a tremor."
Dystonia is not caused by stress or anxiety. There is very little awareness around Dystonia and there is no cure. Some patients are so disabled that they end up wheelchair-bound. Many Dystonia patients have social anxiety due to shame around the physical symptoms and some even have thoughts of suicide. The only current treatments are medications and Botox injections. Management therapies like physical therapy, massage, exercise, or counseling may slightly reduce symptoms in some patients, but not all. Deep Brain Stimulation (DBS) surgery is available only to approved Dystonia patients and reduces symptoms by 30-80% on average. Most Dystonia patients have tried numerous treatments without success and are left to suffer with the disabling effects.
You bring more awareness to Dystonia just by listening to this episode and we thank you for that.
____________________________________________________
More resources and how to work with me here: https://linktr.ee/nerveboss
