Kapil's son, Niam was diagnosed with 22q in utero following the 20 week ultrasound after doctors noted a heart abnormality. Since birth, Niam has bravely faced many procedures, checkups, and illnesses, including two open heart surgeries, four angioplasties, a g-tube, and ear tubes. Throughout Niam’s challenges and victories, Kapil has been one of his fiercest advocates and has begun focusing on finding more ways to provide a better life experience for kids suffering from diseases and disabilities. He shares his perspective of what it is like being the father of a child with 22q and how he and his wife use communication to navigate all the challenges on their journey.
Kapil refers to himself as a serial board member and is the current Vice President of The 22q Family Foundtation. He is also a member of the Family Advisory Board and the Surgical Experience Advisory Board at Ann & Robert H. Lurie Children’s Hospital of Chicago, with the hope of helping to make parents experiences at the hospital even better. He recognizes the stress and challenges that comes with having a medically fragile child and is truly, one incredible dad.
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Within this episode we discussed:
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