Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) Families Conference, held 5th to the 7th of May 2017.
- Welcome & Introduction
- Inherited Retinal Dystrophies and Syndromes – Prof Andrew Webster
- What can an alliance of patients and professionals achieve – Prof Graeme Black
- Medical Q & A
- The current clinic experience for families – Rob Henderson
- The Genetic Eye Clinic experience – Theo Gale
- Life beyond diagnosis – Laura Ross
- How families cope and provide the right support for their children – Bo Anderson
- Q & A
- Translating Science into Medicine – Dr Mariya Moosajee
- Science Q & A
- A Family Story – Chloe Joyner & Bhavini Makwana
- Pathway to support for education – Wendy Sainsbury
- The Appreciative Enquiry Session (part 1)
- The Appreciative Enquiry Session (part 2)
- The Appreciative Enquiry Session (part 3)
- The Appreciative Enquiry Session (part 4)
- The Appreciative Enquiry Session (part 5)
- The Appreciative Enquiry Session (part 6)
