The majority of people living with a rare disease in Europe also live with a disability, and have to deal with unfair daily barriers to living freely and reaching their full potential.
Julien Poulain, Communications Manager at EURORDIS, explores some of the barriers faced by people with a visible or invisible disability, and particularly focuses on those barriers relating to accessible workplaces and the moving across borders to visit, or live in, a different European country.
Rare disease advocates Rebecca Tvedt Skarberg, who lives in Norway with a visible disability, and Adéla Odrihocká, who lives in the Czech Republic with an invisible disability, both share their distinct experiences of facing inequitable disability policies across Europe. Raquel Castro, Social Policy and Initiatives Director at EURORDIS, explains how disability policies can be improved across Europe, and details the further progress that must be made.
Do you want to share your experience of living with a disability? Or do you want to share your views on how European policymakers should better empower people living with a disability? Email us at RareOnAir@eurordis.org.
