In this episode, Rita Francisco, Survey Junior Manager at EURORDIS, and Mariette Driessens, Policy officer at VSOP -
the Dutch Alliance for Rare disease, are joined by Charlotte van Beuzekom, Endo-ERN Manager, and
by Michelle Battye, ERN eUROGEN Manager as they undertake the challenge of doing a ‘compare and
contrast' exercise, to help us understand how similar, or different, European Reference Networks
(ERNs) can be from one another.
We get personal insight into what being ERN Manager entails, we learn more about current ERN projects and their recent challenges and achievements, and we even take a sneak peek into what Charlotte and Michelle expect
the future will bring! Listen now to discover how and why no two ERNs are alike!
Additional resources:
If you are interested in learning more about the ERNs and VSOP better, visit:
Endo-ERN website: https://endo-ern.eu/
ERN Eurogen website: https://eurogen-ern.eu/
European Advocacy Groups (ePAGs): https://www.eurordis.org/our-priorities/european-reference-
networks/epag/
Testimony from a Dutch national ERN expert; https://zeldzameaandoening.nl/europa/erns/ern-
overzicht
VSOP: https://vsop.nl/english/
Email the podcast at RareOnAir@eurordis.org.
