In this episode of Rare on Air, host Julien Poulain explores the potential of drug repurposing to ensure greater accessibility of medicines for rare disease patients. He is joined by Leonardo Panzeri, President of the Italian Osteogenesis Imperfecta Association (Associazione Italiana Osteogenesi Imperfetta), who highlights the pvalue of identifying new uses for existing medications, including to the community of people living with Osteogenesis Imperfecta. Julien also engages in discussions with EURORDIS colleagues, Claudia Fuchs and Judit Baijet, who shed light on the REMEDi4ALL project. This ambitious EU-funded initiative is aiming to advance the repurposing of approved, discontinued, shelved, or investigational therapeutics. Also, Leonardo, Claudia, and Judit all emphasise the crucial involvement of rare disease advocates in drug repurposing efforts and provide insights on how more advocates can actively participate.
Learn more about the REMEDi4ALL project and why patient
involvement in drug repurposing is so crucial: https://www.eurordis.org/what-can-drug-repurposing-mean-to-patients-with-rare-diseases/
Contact the podcast by emailing RareOnAir@eurordis.org.
