Rare on Air host Julien Poulain talks to Kym Winter, Founder and Chief Executive Officer of Rare Minds, and Matt Bolz-Johnson, Mental Health Lead and Healthcare Advisor at EURORDIS, to explore the often-overlooked topic of the mental wellbeing challenges commonly presented to those living with a rare disease. Kym talks about how her family’s own experiences compelled her to establish the UK’s first specialist rare disease counselling service, and Matt discusses the opportunity that Europe must take to improve mental wellbeing for people living with a rare disease.
Email the podcast at RareOnAir@eurordis.org.
