In this episode of our bonus series marking Rare Disease Day, we share the inspiring story of Khim Bahadur. When Khim's son, Animesh, was diagnosed with Osteogenesis Imperfecta (OI), he encountered a daunting lack of resources and awareness in Nepal. Undeterred, Khim sought global support, securing life-changing treatment abroad for Animesh and becoming a trailblazer for OI advocacy in Nepal. Through education, media campaigns, and community building, Khim continues to drive rare disease awareness and inspire others across the nation.
Visit â rarediseaseday.orgâ to share your story or get involved. Rare Disease Day is on 28 February 2025.
