This week, Amanda and Veronica are joined by the founders of the registered Canadian charity, Endometriosis Events, Tami Ellis and Leah Haynes. The four talk about how Tai and Leah met, bonded over their endometriosis, and decided to create their charity, Endo Events. Tami and Leah share how many years and doctors it took for them to finally be diagnosed, and how their own experiences shaped wanting to create a safe, informative, and fun space for others with endometriosis in the Toronto and GTA area. They talk about the issues and gaps in women’s health care in Canada, and how the dismissing of pain and symptoms often leads to extremely long and grueling diagnosis timelines. Leah and Tami talk about the importance of community in chronic illness, and how they’ve formed their own with Endo Events. They explain what their charity does, and the spaces they create for endo awareness, support, and education. The four touch on the importance of political action. Veronica and Amanda play a game with the pair.
Tami Ellis and Leah Haynes are the co-founders of the registered Canadian charity ‘Endometriosis Events’. Endometriosis Events raises awareness for the disease endometriosis through our facilitation of a monthly Canada-wide virtual support group; hosting events, and our latest initiatives - political action and educating youth. Endometriosis Events came about when we met and bonded over our similar experiences. They decided they wanted to work together and create something unique for fellow endometriosis patients; they realized the importance of bringing the endo community and its supporters together where they could learn from each other as well as learn different ways to have a more comfortable life and cope with this diagnosis.
Socials:
Instagram (@endoevents)
X (formerly Twitter) (@endoevents)
Contact:
Tami Ellis & Leah Haynes
Email: endometriosisevents@gmail.com
Website: https://www.endometriosisevents.com/
