Show Notes:
Ashley talks with SRF Co-founder and Syngap Dad Mike Graglia. Mike talks about founding SRF with his wife, Ashley Evans & raising a Syngapian child. He offers his best advice to new SYNGAP1 parents.
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Research Fund: https://www.syngapresearchfund.org/
Donate: https://www.syngapresearchfund.org/donate/donate#googtrans(en|en)
Mike Graglia: https://www.syngapresearchfund.org/team/mike-graglia
Ashley Evans: https://www.syngapresearchfund.org/team/ashley-evans-mphil-mba-co-founder
Mike & Ashley’s Story: https://youtu.be/lLO2hsAi4-M & feature in Newsweek: https://www.newsweek.com/my-son-syngap1-rare-genetic-condition-1776362
Tony’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/tony
Number Blocks: https://www.netflix.com/title/81272431
Connect with SRF:
Facebook: https://www.facebook.com/cureSYNGAP1
Twitter: https://twitter.com/intent/user?screen_name=cureSYNGAP1
Instagram: https://www.instagram.com/curesyngap1/
LinkedIn: https://www.linkedin.com/company/curesyngap1/
TikTok: https://www.tiktok.com/@curesyngap1
SYNGAP10 Weekly Video Podcast with Mike: https://www.youtube.com/playlist?list=PLjpr3a14_ls38mAeOZeErFpEjbrw5mGhR
Follow Ashley Frye:
Facebook: https://www.facebook.com/ashley.hewettfrye
LinkedIn: https://www.linkedin.com/in/ashley-frye-62095582/
Instagram: https://www.instagram.com/fryemom/
Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@syngapresearchfund.org
Music: In the Forest... by Lesfm from Pixabay
Episode 002 SynGAP Stories, February 21, 2023
#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology
