Amy Shinneman was born with Muscular Dystrophy but wasn't diagnosed until the age of 44. During this episode, we talk about:
How her and her husband, Jamie, did the 50th year at Berlin and NYC … maybe Marine Corps Marathon in 2025? Tokyo in 2027?
All about the Berlin Marathon and getting to Europe for the first time
Tackling the World Majors and how they’re thinking about it
Living undiagnosed with a rare form of Muscular Dystrophy for 44 years
What it was like becoming a mom with an (unknown) disability
How she finally got a diagnosis of Bethlem Myopathy and how life was different after
The MDA and the work she’s done with them
What it’s like being a mom with a disability
How her husband, Jamie, got into running because of their kids
Getting a duo bike from MDA and doing her first marathon with her husband pushing at the Chicago Marathon
How her son finished third in his age group at the New York City Marathon and received a Tiffany’s plate
Race experiences and what she keeps in the duo bike during a race
How one of her sons taught her to run on an underwater treadmill
Using stem cell therapy as a way to treat MD
The mental health side of having a disability
“Once you’ve met a person with a disability, you’ve met one person with a disability”
The fact that people judge her (and have screamed at her) for parking in an accessible parking spot
Thank you to Fringe Heals for supporting this episode. Use code ALLY25 for 25% off your order through 12/31/24.
This is a SandyBoy Productions podcast.
