Elizabeth shares the story of her son Caleb's diagnosis and
treatment for neuroblastoma. She discusses the misdiagnosis and delays in
getting the correct diagnosis, as well as the challenges they faced during
treatment. Elizabeth also talks about the lack of support and understanding
from others, both during and after treatment. Curtis emphasizes the importance
of listening to parents and giving them credit for their knowledge of their own
children. They also discuss the misconceptions around ringing the bell and the
ongoing fear and uncertainty that comes with pediatric cancer. The conversation
touches on the need for better treatment options and support for families. The
conversation highlights the importance of bedside manner and the need for
healthcare professionals to take their time and be more careful when treating
pediatric cancer patients. The parents express their frustration with nurses
and doctors who have a bad attitude or rush through procedures, causing
unnecessary trauma to the children. They also discuss the lack of support in
schools for children with cancer and the need for more awareness and
solidarity. The conversation ends with a focus on the resilience and
personality of Caleb, the youngest child, and the importance of finding moments
of joy and adventure amidst the challenges of pediatric cancer.
