Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Shannon (@chronicpainhacker) who shares her story with Fibromyalgia, Guillain-Barre Syndrome, FND, Mental Health, and Dysautonomia.
Things that have helped her:
Divide your day in half with a nap in the middle to help with fatigue
Guided meditation and breathwork.
Light therapy when you first wake up in the morning
Get involved in your own healthcare and speak up when a treatment option makes you uncomfortable
Join chronic pain support groups
Group therapy with your partner
Activities: Gardening, Word searches, adult colouring books, going to the library, reading, journalling, bibles study
Social connections are important!
Radical acceptance - “Pain + not acceptance = suffering” “Pain + acceptance = thriving”
Carve out joy and make things interesting in your life
Give yourself grace
Set yourself up for success (doing tasks slightly different to work with your body, rather than against it)
Recommendations:
Shannon’s book: Chronic Pain Hacker: Because Healing is Hard https://amzn.to/48oIdt5
Book: The Body Keeps Score https://amzn.to/3NvUpA7
Vagus Nerve exercise book (many different options): https://amzn.to/3GMIBFT
Book: The Missing Link https://amzn.to/3tlcslC
