Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Jennifer (insta: gracefully_jen) who is also the host of the podcast called My Spoonie Sisters (insta: my_spoonie_sisters)! She shares her journey with rheumatoid arthritis, pustular psoriasis, and alopecia areata
Notes:
For friends: Educate yourself, listen, be flexible, check in regularly, include them, be empathetic, respect their needs, and celebrate their strengths. Be a spoon collector, not a fork giver
Move doctors if you don’t feel one is listening to your concerns
Advocate for yourself if you feel a medication is not reacting well with your body
Don’t get stuck in your hurt because your life is worth living, it's just going to look different
You matter, you are enough, you are valuable
You need to find your own way for living your best life despite what you are going through
Don’t be afraid to find people and reach out about things they’ve tried or done or helped them to get more ideas
Don’t get stuck morning the life you once had because life is still beautiful .
