Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Em (insta: chronically_creative_em) who shares their journey with fibromyalgia, migraines, asthma, IBS, depression and anxiety, and more!
Notes:
Goal to speaking to a friend once a week
Find a balance of doing the things you love but not pushing yourself too
To do list app: habitica
Book/reading app: Blinkist
Face massager app: forYou
Storage on wheels for all your supplies and take throughout your house
Walking sticks / canes:
Cheaper: Flexyfoot with cork handle
More expensive: Neo-Walk (has fun designs)
Starting out of your diagnosis journey, you have 2 obstacles:
A diagnosis: overcome your people's pleaser side and advocate for yourself and/or bring someone with you and follow people on social media who you can relate to and feel less alone but stay away from accounts that make you feel shameful.
Mental side of it: reclaim the chronic illness identity and be proud of it go from feeling shameful to feeling prideful in who you are and how you identify which may be disabled.
