Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Interview portion starts at 4 minutes and 3 second
Today we chatted with Kiara (@thechronicallyillnetfitter) and she shares her story with HEDS, POTS, ME, fibromyalgia, endometriosis, chronic migraine, MCAS, IBS, chronic pain and Eustachian tube dysfunction (ear).
She gives us the perspective of having a chronic illness while in elementary and high school.
Notes:
You have to find a balance of not pushing yourself too hard while still doing the things you enjoy.
The Australian healthcare system has a dual model, private and public health model which allows for emergencies to be covered by the government but some treatments need to be paid for or if you have private health insurance, it would subsidize a portion of that treatment.
How COVID affected schooling while having a chronic illness
When you are first getting diagnosed, it is helpful to find people who have the same condition as you and you can see if they are doing well, there is hope for living a fulfilled life despite your chronic illness!
Get involved in the chronic health community because it helps you feel less alone!
