Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Olivia (insta: oliviardennis) who has a Christian based chronic illness page (insta: Yourpainhasapurpose). She shares their journey with POTS, CMT, GP, hEDS, chronic migraine, fibromyalgia, IBS, GERD, and mental health conditions. She also makes care packages for chronically ill teens called spoonie boxes!
Notes:
Slow down and give yourself compassion
Salt/electrolyte recommendations: Vitassium salt pills, Liquid IV, LMNT, pedialyte
Ice pack https://www.releafpack.com
Coping skills
Therapy
Deep breathing
Grounding
Affirmations
Mindfulness
Journaling
Self care activities
Spending time with pets
Watching a show or movie
Lighting a candle
Reading a book
Listening to music
Support groups
Even if (insta: @weareeven) bible study support group for women with disabilities https://linktr.ee/weareevenif
Promise: support group for people with CMT https://www.cmtausa.org/get-involved/cmta-compass/
Take it one day at a time, he present and mindful
Don’t give up - there is support and love out there for you
Continue giving yourself grace and compassion
Don’t over do yourself
Trust your gut BUT if you have stomach issues, maybe don’t
