Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! Visit patientpov.ca for episodes, updates, resources, blog, and freebies!!
Today we chatted with Stephanie (insta: Chronically_stephanie_) who is a mom and chronic illness warrior. She shares her journey with post Wegener’s Granulomatosis, psoriatic arthritis, Ankylosing spondylitis, chronic migraines,
Notes:
You can “fire” your doctor if they are not taking your concerns seriously
I don’t want a diagnosis and we don’t want to be sick but we do want to be able to have the correct treatment, which can only happen with the right diagnosis
Even when you have a diagnosis, it may take a to find a treatment that works and it may work well for you now but that could change
Have things that you need close to you whether you set up a mini kitchenette or you have a bag that has your essentials you keep with you all the time, it is important to have what you need around you
Bearable - medication and symptom tracker app
Hang in there
Keep going, don’t give up
