Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today, I had the chance to chat with Sarah who shared her experience of living with POTS, Fibromyalgia and ME/CFS.
She has her own podcast: Be "POTS"itive! - with Sarah Reid where she gets real about having a chronic illness in her 20s and can be found on instagram @be_potsitive
You can also purchase chronic illness merch she has designed https://www.redbubble.com/people/Be-Potsitive/explore?page=1&sortOrder=recent
Notes from this show:
There are some doctors that suck so we need to build our care team with professionals that care for and support you!
Seeing the beauty in the right now while having hope for the future.
Grief of having a chronic illness is real! You can grieve a healthy body, or a body you never got to have, learn to accept and thrive in the now. Our emotions will ebb and flow, but it is okay to process the emotions as they come.
Resources:
Devotional book: Searching for Sea Glass: Journeying with God Through Chronic Illness 30 Devotions: https://www.amazon.ca/Searching-Sea-Glass-Journeying-Devotions/dp/1777721407?&_encoding=UTF8&tag=patientpov-20&linkCode=ur2&linkId=93284a8329b5900d3c3069f812ad9a1f&camp=15121&creative=330641
Compression socks
Electrolyte drinks:
BIOLYTE
LMNT
Ice packs on the go
You are not alone and everyday will look different. Remember to rest, even on the good days.
