Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
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Today we chatted with Ali (insta: alison.rheaume) who shares her story with Concussion, Hypoglycemia, EDS, Dysautonomia, Narcolepsy, Endometriosis, Auditory Processing Disorder, Asthma, Allergies/MCAS... and living life with all of them!
Notes:
Ali's Medical Journey and Conditions - Discussion of Ali's medical conditions including concussion, dysautonomia, endometriosis, and advocacy work.
Daily Life with Chronic Illnesses - Discussion of Ali's daily routine, challenges, and coping strategies for managing multiple chronic conditions.
General Information: Ali outlines a typical day including morning and evening routines and alternating cognitive and physical tasks with restorative breaks.
Diagnosis Journey and Advocacy Work - Discussion of Ali's difficult diagnosis process and decision to advocate for the chronic illness community.
Tips and Advice - Ali shares tips for a natural approach, support groups, and words of encouragement.
Mindset and self-care - Discussions around embracing growth mindset, private productivity, and not needing validation from others.
You are loved for who you are and do not need to prove yourself to others. Introduces the concept of 'private productivity' - productive tasks done daily that no one sees but benefits well-being.
