Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
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Today we chatted with Shyla (insta: @chronicpaingirls ) who shares her story with severe scoliosis, chronic pain, epilepsy (seizures), and as a child sexual abuse survivor!
Notes:
Support Systems and Perspective Shift - Conversation about how Shyla's doctor's comments impacted her outlook and her husband's role in helping her accept her pain and limitations.
Impact of Chronic Pain on Daily Life - Discussion of how Shyla's chronic pain affects her daily activities, work, appetite, and ability to do housework and errands.
Mental health journey and connection to chronic pain - Discussion of how mental health has evolved over time and connection between past trauma, mental state, and chronic pain levels.
Experience with scoliosis and chronic back pain - Sharing of experience with scoliosis diagnosis, wearing brace in high school, impact on activities and social life, and current pain levels.
Advice to younger self about brace in high school - Advice not to worry about what others think and that it's nothing to be embarrassed about.
Resource recommendations - Book and social media recommendations for learning about trauma, healing, and connecting with others with similar experiences.
Recommendations for books: Body Keeps the Score, Mind Over Matter, and You Are the Placebo about trauma, healing from injury, and placebo effect.
Recommendation to use social media to connect with a large community of others with similar experiences rather than for comparison.
