Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Lexi, a fellow spoonie and disability advocate, who shares her journey with Neuromyelitis Optica (NMO), long covid, dysautonomia, and anxiety.
Things that have helped her:
Support system - in person (Mom and fiancée), social media (connecting with people who can relate)
You need to advocate for yourself or have people around you who can advocate for you (even if you are experiencing medical gaslighting)
Find hobbies that you enjoy, explore your creativity, find something that feeds your mind and soul that interests you
Leaning on the online community has helped her feel less alone on her health journey
Look at everything for the beautiful thing that it is, let's focus on the good and keep moving forward
Productivity is not measured to your worth
Resource links:
Pedialyte: https://amzn.to/46UJ1F2
