Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Kisha, a public health nurse with POTS. She created her instagram page as a way of explaining what life is like with a chronic illness for her family and now it extends to those who have chronic health conditions or their loved ones!
Notes from our talk:
Everyday is different and everyday is hard, but we need to find time to rest our bodies
Coping strategies she has found to help her:
Being in peace and quiet
Reading the bible
Calm app - brown noise or green noise
Journaling - feelings from the day or anything that comes to mind
You are your own biggest advocate! Don’t stop if you don’t feel the answers are the solutions to your problems!
There is an answer out there for you, just keep pushing
The diagnosis is just validation for how you’ve already been feeling
What you are going through is real - don’t let the doctors make you think you are making it up or that it's all in your head because it's not!!
Resource links:
Liquid IV
Pink himalayan salt
Dysautonomia International: http://www.dysautonomiainternational.org/
Dr. Diana Driscoll https://potscare.com/
