In this episode of the Ask a NICU Mama podcast, host Ashley O'Neil speaks with Jessica, founder of We Are Brave Together, about her journey as a caregiver for her son with Prader-Willi syndrome. They discuss the challenges of motherhood, the importance of community support, and the release of Jessica's book, Becoming Brave Together (an anthology). The conversation highlights the emotional rollercoaster of receiving a diagnosis, coping strategies, and the need for self-compassion among caregivers. Jessica emphasizes the significance of shared stories and the necessity of advocating for better support systems for families with complex medical needs. You do not want to miss this episode!
