Rare diseases are a passion for Candace Lerman. She doesn't let it define her either. She defines it through her social media outreach and website. It's an inspirational story too. From sitting in a hospital bed trying to spell her rare blood disorder, to successfully re-purposing a drug not FDA approved to treat Immune Thrombocytopenia or ITP. (Go ahead, try to pronounce it.)
Her path forward evolved into becoming a rare disease warrior and helping others. There's more to her story, of course. There always is.
There may be another positive development here for all rare disease patients. All because she decided to make a positive difference.
Follow Candace on Twitter at:
https://twitter.com/RareCandace
Instagram: https://www.instagram.com/rarecandace/
Her website is: https://www.rarecandace.com
Rare Disease Resources:
