Good day!
This week’s episode of #TheTyePod features Nora Ramirez! Nora, an MDA ambassador, shares her journey with selenon related myopathy, a rare form of muscular dystrophy she was diagnosed with at age seven.
She discusses the challenges faced by her and her siblings, including misdiagnoses and medical trauma. Nora emphasizes the importance of advocacy through her involvement in various nonprofit organizations. She highlights her use of meditation and hobbies like drawing and music to cope with pain and maintain mental well-being!
Thank you to Nora for sharing a bit of her story! You can follow her on Instagram at @thatchickwithmd
This week’s episode is in my bio! As always, thank you so much to everyone who listens, follows, shares and interacts with my content and a huge shoutout to the amazing guests who take time to come on my podcast.
If you or anyone you know are interested in making a guest appearance please send me a message!
Signed,
Your friendly neighborhood PhD 💙
#musculardystrophywarrior #livingwithmusculardystrophy #disability #disabilityawareness #disabilitylife #disabilitycommunity #wheelchairlife #wheelchair #wheelchairusers #wheelchairstyle #wheelchairgang #wheelchairman #wheelchaircommunity #human #humanbeing #humanness
