In this episode of The TyePod, I talk with George Pollock (FSHD advocate and cyclist) about living with facioscapulohumeral muscular dystrophy (FSHD), challenging medical advice, and turning diagnosis into action.
George shares how movement has become his resistance, why data and community are keys to progress, and how he’s helped raise awareness and funds through the Race Across America. 💪
His story is a reminder that advocacy can start with your passion-whether it’s a podcast or a bike-and that every mile, every voice, and every effort brings us better treatments and closer to cures. 🧬❤️
🎧 Tune in to hear about:
• Why movement matters with muscle disease
• How endurance races became platforms for change
• The urgent need to include early-onset patients in trials
This week’s episode is in my bio! As always, thank you so much to everyone who listens, follows, shares and interacts with my content and a huge shoutout to the amazing guests who take time to come on my podcast.
If you or anyone you know are interested in making a guest appearance please send me a message!
Signed,
Your friendly neighborhood PhD 💙
#musculardystrophy #FSHD #disabilityadvocate #raredisease #invisibleillness #chronicillnesswarrior #bikeforacure #patientadvocacy #movementismedicine #disabilitycommunity #TIEpodcast #endurancecycling #FSHDsociety #neurodiversevoices
