Description

Jenny Jones joins The TyePod to talk about her mission as a Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS). I especially appreciate her sense of humor from her profile alone by taking a knife to some troublesome polyps.

We dive into:

• Her advocacy roots and the role of therapy and self-care
• Writing a children’s book to raise awareness about FAP
• Collaborating with the National Organization for Rare Disorders (NORD)
• Using social media to create a supportive, informed community
• The emotional weight of advocacy especially after the loss of her mom

🎧 Tune in via the link in my bio, or search The TyePod on Spotify or YouTube.

💬 If her story resonates or you want to share your own, my DMs are always open.

With love,

Your friendly neighborhood PhD

#RareDiseaseAdvocate #FAPAwareness #ShortBowelSyndrome #DisabilityAdvocate #TheTyePod #PatientAdvocacy #RareDiseaseWarrior #ChronicIllnessSupport #DisabilityCommunity #PodcastEpisode

📝 Accessible Image Description:

A podcast promo graphic with a scenic park background at sunset. The title reads: “THE TYE  POD” in bold blue and white letters, with a cartoon podcaster icon wearing a black cap in the center. Below it says “Season 2 Episode 38.” On the left is a smiling man with glasses and a beard labeled “@dr.tyedmartin.” On the right is a woman with long brown hair wearing a dark top and holding a stuffed intestine plush, labeled “@lifesapolyp.”